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Are you a Patient, Family Member, or Physician seeking information? Are you interested in Membership in the PPA? Are you interested in Genetic Testing Services? At this time while our site is undergoing construction please contact PPA Secretary Linda Feld at lfeld@cfl.rr.com or call 407-339-9499.
  • Physicians, please see our Physicians Information Service at: PPADoctor
  • Use PPA Ask the Experts to get answers to your medical questions.Please email lfeld@cfl.rr.com
  • To learn how to participate in clinical trials, the PPA Research Registry, and other research, see
    Research Opportunities and Information.
  • For information about periodic paralysis, myotonia, and related disorders, please visit the Judith Tuttle Memorial Research Library.

    2009

    11th Annual

    Periodic Paralysis Association Conference


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    The Rosen Centre

    9840 International Drive

    Orlando, Florida 32819

    www.rosencentre.com


    October 9th, 10th and 11th, 2009


    Presentations by:


    Dr. Stephen Cannon, M.D.

    Southwestern Medical School


    Dr. Frank Lehmann-Horn,M.D., Ph.D

    The Institute of Physiology

    University of Ulm, Germany


    Dr. Michael Segal, M.D., PhD.

    Chairman & CTO SimulConsult, Inc.

    Past Assistant Professor Neurosurgery/Neurology

    Harvard Medical School


    We look forward to seeing everyone and are anticipate a wonderful turnout! Meet that person you have been talking to online, become a personal part of the support group, and develop life-long friendships.

    Members of the PPA will be available on Friday, October 9th, from 4-7 p.m. to greet attendees at the Rosen Centre, Salon 19. Please drop by and say “Hello.” Conference materials will be available at that time or can be picked at the beginning of the conference.

    We encourage all attendees to travel with a companion who is familiar with your condition in the event of an emergency. YOU are responsible for your medical care. To assist, we are working to establish relationships with the local hospitals, physicians, and E.M.S. Our physicians in attendance must be allowed to participate in the presentations.

    Blankets and pillows will be available in the conference room should you need them, as well as a limited number of wheelchairs for emergency use. If you need a scooter or wheelchair for the length of the conference, they can be rented in the Orlando area and delivered to the hotel.

    Please call the Rosen Centre at (407)996-9840 or 1-800-204-7234 to reserve one of the limited number of rooms available at $99 per night. There are many handicap rooms available. Ask for the group rate under “Periodic Paralysis Association Conference.” Cut- off date for the group rate is Wednesday, September 9, 2009. There is a $6.00 per day parking fee for self-parking and a $15.00 per day parking fee for valet. Refrigerators are available for a fee of $9.00 a day.


    The voluntary registration fee to attend the PPA Conference is $50 for an individual or $100 per family. “Payment for the PPA Conference is a voluntary donation and not a fee.” If there are monetary concerns, please contact Misty Smith at ms@pdfcomplete.com. Voluntary registration fees can be sent to

    Shelley Shifman, 3773 Windwood Dr., Rockford, MI 49341.


    Medical and Scooter Rental


    http://www.caremedicalequipment.com/


    CARE Medical Equipment
    102 Drennen Rd. B-1
    Orlando, Florida 32806
    Phone (407) 856-2273 • Toll Free U.S and Canada (800) 741-2282
    Email:
    info@caremedicalequipment.com


    Another Option for Rentals:


    ScootAround


    National Wheelchair/Scooter Rental Company


    http://www.scootaround.com/


    Oxygen


    Colonial Medical Supply Orlando

    http://www.colonialmed.com

    Phone: (800) 747-0246

    Fax: (888) 849-6456



    Eclipse Oxygen Rental

    http://eclipseoxygenrentals.com/

    1-800-308-2503


    *********************************************************

    VAN RENTAL



    Handicap Van Rental

    http://www.floridavanrentals.com/


    1-866-322-4400

    ********************************************************************************


    International Drive Trolley( street where Hotel is located)

    Fully handicap accessible with lift

    http://www.internationaldriveorlando.com/irideTrolley/index.asp



    Transportation to and from the Hotel:

    Mears Transportation service: www.mearstransportaion.com (Handicap-equipped with call ahead reservation)

    Star Taxi: 1-407-857- 9999

    Yellow Cab: 1-407-422-2222


    Rental Car Agencies:

    Alamo: 1-800-327-9633

    Avis: 1-800-831-2847

    Dollar: In USA 1-800-527-0700, Outside the USA 1-800-800-6000

    National Car Rental: 1-800-227-7368


    The Rosen Centre Hotel offers the only TSA-approved remote skycap service in the United States; guests staying at the Rosen Centre are entitled to utilize a completely new concept in the travel industry. This affordable service allows departing quests to receive their airline boarding passes and check their baggage directly from the hotel. Travelers can rid themselves of their cumbersome baggage and avoid long airport check-in lines by simply presenting a government-issued identification and airline itinerary to the skycap desk in the hotel lobby. Fast, secure, the entire process takes only minutes.


    There are several restaurants located within the Rosen Centre and within easy walking distance on International Drive. There is also a handicap-equipped trolley service that runs the entire length of International Drive so you can easily travel from location to location.



    An itinerary will be posted to the PPA website as soon as it is finished. It will also be sent out in the PPA Communiqué to our members and through other forms of email. This will be an awesome experience for anyone who has never attended a conference in the past. Previous first-time attendees have stated “it is a life-changing experience.”


    Disney is giving FREE admission to people this year on their birthday so, if anyone is celebrating while at the conference they should definitely go to the Disney site and pre-register. You must pre-register!

    http://disneyparks.disney.go.com/disneyparks/en_US/WhatWillYouCelebrate/index?name=WDWCelebrationsOverviewPage&bhcp=1


    If you are planning to attend the conference, please email Linda Feld at lfeld@cfl.rr.com

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    Section Last Modified:
    6/24/2009 09:19 PT
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