2013 Conference – Orlando :: Review

The Agenda



Friday
  • 3pm – Registration opens for PPA Patients and families and Social Time is available until 8pm.
  • 4pm – Welcome from Jacob Levitt MD
  • 4:15pm – Patient share stories: open mic. Suggested sharing points:
    • a) What kind of PP do you have?
    • b) Where are you from?
    • c) Who are you here with?
    • d) What brings you here?
    • e) One positive experience with PP
    • f) One negative experience with PP
  • 5:00pm – Break
  • 5:10pm – More stories
  • 6:00pm – End for the evening, go to dinner
Saturday
  • 8:15am – Registration opens for PPA Patients and Families
  • 9:00am – Welcome from PPA President Jacob Levitt and Board Introduction
  • 9:20am – James Cleland/Jacob Levitt – Differential Diagnosis of Periodic Paralysis
  • 9:50am – James Cleland/Jacob Levitt – Diagnostic Tests for Periodic Paralysis
  • 10:20am – Break
  • 10:30am – James Cleland – The New Zealand Experience?
  • 11: 00am – Questions
  • 11:10am – Nadia and Ukraine Doctor – PP in the Ukraine
  • 12:15pm – Party Lunch and Webinar Questions are due
  • 2:00pm – Grace Charles –Yoga for the Neurology Patient and Alternative Therapies
  • 3:00pm – Segal – Update on Lidocaine research
  • 3:30 – 4:15pm –Round Table with Dr. Lehmann-Horn, Dr. Cleland, Dr. Charles, Dr. Segal, and Dr. Levitt
  • 4:15 – 5:00pm – Webinar Questions (doctors only)
  • 5:00pm – Conference Ends for the Day
  • 6:15pm – Speakers’ dinner: Lehmann-Horn, Cleland, Levitt, Segal, Charles, (?Griggs, doctor from Ukraine, others?)
  • 7:30pm – 8:30pm – Piano Recital MAYBE
Sunday
  • 9:00am – State of the PPA: current financial health, what we have done, what we plan to do, the need for meaningful help
  • 9:10am – Genetic Testing Blood Collection
  • 9:10am – Frank Lehmann-Horn – Anesthesia – Pearls and Pitfalls in Periodic Paralysis
  • 9:50am: Break
  • 10:00am – Lehmann-Horn – “New Research and Drug Therapies” // Hypo Survey (Frank with PPI) // Thymus Hyperplasia
  • 10:50-11:10: Questions
  • 11:10: Lehmann-Horn / Segal – The Genetic Testing Process and Exome Sequencing and New Differential Diagnosis Software incorporating genetic information
  • 11:45am – Closing Remarks and announcements
  • 12:00 – 12:30pm – Webinar Questions
  • 1:00pm – Conference Ends and All Doors are locked



The Speakers




2013 Conference – Orlando :: Review

Dr. Cleland

2013 Conference – Orlando :: Review

Ms Nadia Kalinichenko

2013 Conference – Orlando :: Review

Dr Charles



2013 Conference – Orlando :: Review

Dr. Lehmann-Horb

2013 Conference – Orlando :: Review

Dr Segal



The Lectures

2013 Conference – Orlando :: Review   View the video footage of the lectures this conference