2020 Webinar conference

We are happy to report that our 2020 Conference Webinar was a success! Although we all prefer in-person interaction with these experts, the webinar was also very powerful. The virtual “turnout” exceeded our expectations, and your many comments we have received indicate that you enjoyed and benefitted from attending.

Although the webinar is available for viewing here on the website (and we encourage you to watch it), the highlights are as follows:
  • Dr. Nivedita Jerath gave a great overview of PP
  • Laura Russell discussed PP from a social worker’s standpoint, and the importance of emotional support for the patient and caregiver
  • Dr. Todd Bell provided a timely talk about Covid-19 and its known properties as well as its uncertain interaction upon PP.
  • Dr. Silvestri from Strongbridge Biopharma had a very good program, although due to its proprietary nature we are unable to post it to the website.
  • Dr. Steve Cannon once again gave an insightful, detailed presentation on channelopathies that was both scientific and understandable.

Our thanks to Strongbridge Biopharma for sponsoring this webinar! We intend to feature more webinars beginning the first of the 2021, and they will be focused on single subjects and therefore will be much shorter in length. The PPA is moving forward in new growth directions but we will never leave our roots of being there for you so that you are never alone.


Agenda

09:55 AM   Linda Feld – Opening of the webinar
10:05 AM   Dr. Jerath – Diagnostic challenges and the future
11:05 AM   Laura Russell – Emotional journey Periodic Paralysis
11:45 AM   Dr. Todd Bell – COVID-19 for the Periodic Paralysis patient: Awash in a sea of incomplete science
02:05 PM   Dr. Cannon – 2020 research update on Periodic Paralysis
03:00 PM   Linda Feld, Dr. Jerath and Dr. Cannon will interact live to answer questions
04:00 PM   Say Goodbye and see you next year


The lectures


Introduction
 
Dr Jerath :: Diagnostic challenges and the future
 

Laura Russell :: Emotional journey Periodic Paralysis

 
Dr Todd Bell :: COVID 19 for the Periodic Paralysis patient Awash in a sea of incomplete science
 

Dr Cannon :: 2020 research update on Periodic Paralysis
 
Linda Feld, Dr Jerath and Dr Cannon :: Q&A from the audience
 
2020 Webinar conference
Strongbridge Biopharma :: The Power of Education, Advocacy, & Support