Video Library

General information

PPA- Who We Are,
How To Help
Paralysis Attack ‎‎(Hypokalemic
Periodic Paralysis)
HyperPP Attack
Mild HypoKPP Attack
Mild HypoKPP Attack ‎(Hand)‎
Fournier EMG Protocol
The Diagnostic Journey of
Linda Feld Part I
The Diagnostic Journey of
Linda Feld Part II

The Balancing Act

Primary Periodic Paralysis (PPP) is a rare condition that causes attacks that affect your muscles, resulting in extreme muscle weakness or temporary paralysis, most often with an inability to stand independently, or even sit up. Primary periodic paralysis is not just one condition, but a group of inherited neuromuscular disorders. Although this condition is very rare, it affects about 5,000 to 6,000 individuals in the US or ~3 in every 200,000 people.
The Balancing Act

Lectures from our conferences

In Year 2019


Jack Tarlton – Genetic Investigation
of Secondary and Atypical
Periodic Paralysis

Todd Bell – Q&A with
the audience
Canine Companions for Independance
Scott Wilhoit – Strongbridge
Biopharma plc
Todd Bell – Joint
Hypermobility
Steve Cannon- Research
Updates in Periodic Paralysis

William Caterall – Sodium
Channels and Periodic Paralysis

Stephen Lewis – Periodic paralysis,
a rare conundrum

Doctors at the podium

Subramony – Periodic Paralysis –
Observations

Ann Bealke – Mental Health Care
and Chronic Medical Conditions

In Year 2018

Dr Steve Cannon :: Research
Updates in Periodic Paralysis
Dr Annabelle Baughan :: Anaesthesia
and pre-operative care in the
primary Periodic Paralysis Disorders
Dr Michael Segal :: Explanation
about SimulConsult
Gabriel Low:: Ride for
Rare Disseases
Gabriel Low:: Ride for
Rare Diseases The movie
Dr Frank Weber:: Muscular
Channelopathies in Periodic Paralysis
Linda Feld :: Tribute to
dr Frank Lehmann-Horn
Dr Michael Segal ::
Questions and Answers
E s t h e r M e r k u s ::
To be a Patient and a Doctor
Dr Bas Stunnenberg :: From
evidence-based to personalized
medicine in skeletal muscle channelopathies

In Year 2017

Dr frank Weber ::
Muscular Channelopathies
Dr Ptacek :: Progress
on Periodic Paralysis: A Quarter
of a Century Later
Dr Todd Bell :: Periodic
Paralysis: Other Symptoms
Dr Samantha Shifman :: Getting
The Most Out of Your Pharmacy
Lecture dr T. Malan :: Stem
Cell Therapy, what is possible
Lecture dr Steve Cannon ::
Status overview

In Year 2015

Irm Sanderse :: My Life Changing
Experience in Ulm Germany

In Year 2013

Dr. Levitt: Differential
Diagnosis
Dr. Grace Charles: Integrative
Medicine, Yoga, and Alternative
Therapies
Dr. Weber: Anesthesia New
Drugs and Research
Dr. Cavel Greant: HypoPP Survey
Dr. Cleland: PPA Cases
Dr. Segel: Genetic Testing
Ukrainian Guests:
Comments about PP
Webinar Q&A