Video Library

General information

PPA- Who We Are,
How To Help
Paralysis Attack ‎‎(Hypokalemic
Periodic Paralysis)
HyperPP Attack
Mild HypoKPP Attack
Mild HypoKPP Attack ‎(Hand)‎
Fournier EMG Protocol
The Diagnostic Journey of
Linda Feld Part I
The Diagnostic Journey of
Linda Feld Part II

Patient experience

Christine Zgrabik :: Episode part I
Christine Zgrabik :: Episode part II

 

Youtube channel of Christine Zgrabik


The Balancing Act

Primary Periodic Paralysis (PPP) is a rare condition that causes attacks that affect your muscles, resulting in extreme muscle weakness or temporary paralysis, most often with an inability to stand independently, or even sit up. Primary periodic paralysis is not just one condition, but a group of inherited neuromuscular disorders. Although this condition is very rare, it affects about 5,000 to 6,000 individuals in the US or ~3 in every 200,000 people.
The Balancing Act

Lectures from our conferences

In Year 2019

Jack Tarlton – Genetic Investigation
of Secondary and Atypical
Periodic Paralysis
Todd Bell – Q&A with
the audience
Canine Companions for Independance
 
Scott Wilhoit – Strongbridge
Biopharma plc
Todd Bell – Joint
Hypermobility
Steve Cannon- Research
Updates in Periodic Paralysis
William Caterall – Sodium
Channels and Periodic Paralysis
Stephen Lewis – Periodic paralysis,
a rare conundrum
Doctors at the podium
 
Subramony – Periodic Paralysis –
Observations
Ann Bealke – Mental Health Care
and Chronic Medical Conditions

In Year 2018

 

Dr Steve Cannon :: Research
Updates in Periodic Paralysis

 

Dr Annabelle Baughan :: Anaesthesia
and pre-operative care in the
primary Periodic Paralysis Disorders

 

Dr Michael Segal :: Explanation
about SimulConsult

 

Gabriel Low:: Ride for
Rare Disseases

 

Gabriel Low:: Ride for
Rare Diseases The movie

 

Dr Frank Weber:: Muscular
Channelopathies in Periodic Paralysis

 

Linda Feld :: Tribute to
dr Frank Lehmann-Horn

 

Dr Michael Segal ::
Questions and Answers

 

E s t h e r M e r k u s ::
To be a Patient and a Doctor

 

Dr Bas Stunnenberg :: From
evidence-based to personalized
medicine in skeletal muscle channelopathies

In Year 2017

 

Dr frank Weber ::
Muscular Channelopathies

 

Dr Ptacek :: Progress
on Periodic Paralysis: A Quarter
of a Century Later

 

Dr Todd Bell :: Periodic
Paralysis: Other Symptoms

 

Dr Samantha Shifman :: Getting
The Most Out of Your Pharmacy

 

Lecture dr Steve Cannon ::
Status overview

In Year 2015

 

Irm Sanderse :: My Life Changing
Experience in Ulm Germany

In Year 2013

 

Dr. Levitt: Differential
Diagnosis

 

Dr. Grace Charles: Integrative
Medicine, Yoga, and Alternative
Therapies

 

Dr. Weber: Anesthesia New
Drugs and Research

 

Dr. Cavel Greant: HypoPP Survey

 

Dr. Cleland: PPA Cases

 

Dr. Segel: Genetic Testing

 

Ukrainian Guests:
Comments about PP

 

Webinar Q&A