Held at the Rosen Shingle Creek Resort, we had a record 120 attendees for the three-day event. Excellent presentations were given by the top names in periodic paralysis, including Drs. Jack Tarleton, Todd Bell, Stephen Lewis, Steve Cannon, William Catterall, Sub Subramony, and our own Jacob Levitt. Interesting sessions on PTSD were delivered by Anne Bealke and Amy Shuman.
We were delighted to welcome Canine Companions for Independence, who explained what a service dog can do for you. Also present were our corporate partners, Strongbridge Biopharma and PantheRx., without whom this conference would not be possible. Strongbridge Biopharma hosted an informative dinner for everyone on Friday evening, and attendees had a buffet dinner provided after Saturday’s activities.
The strength of our conferences lies in our attendees and their willingness to share and interact with the doctors, fellow patients, and caregivers. The relaxed, family-style atmosphere gave people chances to establish or renew friendships and contacts while feeling safe, included, and understood. Several people also donated items for an auction that brought in upwards of $1,700
Thank you to all who made it a success, and keep checking our web page for announcements of upcoming conferences!
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The agenda
- 1:30 pm Hello from the PPA – Jacob Levitt
- 1:45 pm Introduction of Board Members
- Shelley Housekeeping details
- 2:00 pm Patrick Cochran making presentation to Dr. Tarleton
- 2:15 pm Dr. Tarleton
- 2:45 pm Questions Dr. Tarleton
- 3:00 Break
- 3:15 pm Dr. Bell interacts with patient’s stories
- 4:30 pm Introduction of Canine Companions for Independence
- 5:00 pm Conference ends for day
- 6:00 pm Doctor/Board dinner
- 8:30 am Introductions by Jacob Levitt of Board
- 8:45 am Dr. Todd Bell
- 9:15 Questions Dr. Bell
- 9:30 am Dr. Lewis
- 10 am Questions Dr. Lewis
- 11:00 am Break for lunch on your own
- 1 pm Dr. Cannon
- 1:30 pm Questions Dr. Cannon
- 1:45 pm Dr. Catterall
- 2:15 Questions Dr. Catterall
- 3:00 pm Break
- 3:15 pm Dr. Round Table
- 4:30 pm Conference ends for Day
- 6:30-9:00 pm Buffet Dinner for all Attendees
- 9:00 am Dr. Subramony
- 9:45 am Questions Dr. Subramony
- 10:15 am Break
- 10:30 am Ann Bealke PTSD
- 11:30 am Closing remarks from Jake
- 12:00 pm Conference ends
The Speakers
Dr. Cannon
Dr. Lewis
Ms Bealke
Dr. Bell
Dr. Catterall
Dr Subramony
Dr. Tarleton
Canine Companions
Dr Jack Tarlton