The Periodic Paralysis Association (PPA) welcomes you to our non-profit organization!

PPA 2019 Orlando Conference

We are pleased to announce our 2019 Orlando PPA Conference. This is a 3 – day conference and is open to all PPA members, their families, and physicians. This will be a wonderful time to renew old friendships and forge new ones! Please click the button below for all information about the conference which includes all speakers, times of presentations, and dinner.

All information about (and registration for) the PPA 2019 Orlando Conference

 


 

Periodic Paralysis is a group of disorders whereby patients become weak due to triggers such as rest after exercise or certain foods.  These disorders are part of a broader class of disorders called ion channelopathies, in which a genetic defect in a muscle ion channel results in symptoms of episodic stiffness or weakness in response to certain triggers.

 

  • Are you a Patient, Family Member, or Physician seeking information about the different types of Periodic Paralysis?
Read about PP
  • Are you interested in Membership in the PPA and get full access to our Forum?
Become a member
  • Would you like to ask a question of our Medical Advisors?
Ask the Experts

 

These questions and more are answered within our site.  Please feel free to browse the menu on the left as well as our highlights at the bottom of this screen!  We welcome you to the PPA and will do our best to assist you as you search for answers about these rare diseases.

 

For patient view information, read these two articles:

Insider Tips on Periodic Paralysis: Issues in Developing a Comprehensive Treatment Plan

From Karate Kid To Paralysis

 


Latest news

NORD webinar on self advocacy and care coordination
Our partners at Strongbridge Biopharma are sponsoring an upcoming NORD webinar on self advocacy and care coordination.  Here are the
Read more.
Forum incorporated in Web Site
The forum is now incorporated in the site. All visitors can read the posts, members can create new topics and
Read more.
Changed services on the PPA Website
We are happy to tell you about some updates to our PPA website, which will better serve people searching for
Read more.

Advice Disclaimer

Always seek the advice of your physician or other qualified health provider with any questions about your medical condition. Do not disregard professional medical advice or delay seeking advice or treatment because of something you have read here. This information is not intended to be a substitute for professional medical advice, diagnosis or treatment.