2013 Conference

The Videos

videoView the video footage of this conference

 

The Info

Periodic Paralysis Association 2013 Conference
October 11-13, 2013

in Orlando, Florida

*Registration for the conference does not include hotel.

Genetic Testing took place at the conference

Confirmed international speaker(s):

James Cleland, M.D. from New Zealand

Frank Weber, M.D. from Germany

 

The Date and Time

Friday:    (This room will not have windows.)
3:00pm – Registration opens for PPA Patients and Families
4:00pm – Welcome from Dr. Levitt and Board Introduction
4:15pm – Patient share stories: open mic. Suggested sharing points:

a) What kind of PP do you have?
b) Where are you from?
c) Who are you here with?
d) What brings you here?
e) One positive experience with PP
f) One negative experience with PP

5:00pm – Break
5:10pm – More stories
5:45pm – Introduction to Keith the Wonder Dog with Linda Feld
6:00pm – End for the evening, go to dinner and/or Miniature Golf open to all. Conference Room doors are locked.

 

Saturday

8:15am – Registration opens for PPA Patients and Families
9:00am – Welcome from PPA President and Introduction of PPA Board and Conference Volunteers
9:20am – Jacob Levitt – Differential Diagnosis of Periodic Paralysis and Important Diagnostic Tests
9:50am – James Cleland – Electrodiagnosis of Periodic Paralysis
10:20am – Break
10:30am – James Cleland – PP in New Zealand and Some Cases
11:10am – Questions
11:30am – Break to prepare for lunch (everone MUST leave the room)

12:30pm – Party Lunch

1:15pm – Our Ukrainian guests share their story through translators

1:45pm – Auction

2:00pm – Grace Charles – Yoga for the Neurology Patient and Alternative Therapies

2:30pm – Grace gets people moving and stretching

2:45pm – Mickey Segal – Combining Clinical and Genome Information to Improve Diagnosis AND Update on Lidocaine-Insensitive Type of Periodic Paralysis

3:30pm – Break

3:45pm – Questions for Dr. Segal

4:00pm – Deb Cavel-Greant and HypoPP Survey via Webinar from Canada

4:30pm – Webinar Questions

5:00pm – Conference Ends for the Day and doors are locked
Sunday

8:00am – Blood Collection for Genetic Testing begins (will last throughout the day)

9:00am – Linda Feld and Shelley Shifman – State of the PPA: current financial health, what we have done, what we plan to do, the need for help

9:15am – Dr. Frank Weber:  Anesthesia – Pearls and Pitfalls in Periodic Paralysis

9:50am: Break

10:00am – – Dr. Frank Weber:  New Research and Drug Therapies AND Thymus Hyperplasia

10:50am: Questions for Dr. Weber

11:10am – Closing Remarks and announcements and final all around questions for ANY physician
12:00pm – Webinar Questions
1:00pm – Conference Ends and All Doors are locked

 

The Speakers

James Cleland, MD
Frank Weber, MD

Jacob Levitt, MD
Mickey Segal, MD

Deborah Cavel-Greant
Grace Charles, MD

 

The Lectures

The following are links to YouTube uploads of conference talks as well as links to the Powerpoint presentations of the same lectures.

Saturday, October 12, 2013

Saturday, October 12, 2013

9:00am – Welcome from PPA President and Introduction of PPA Board and Conference Volunteers
9:20am – Dr. Jacob Levitt – Differential Diagnosis of Periodic Paralysis and Important Diagnostic Tests

POWERPOINT ONLY of Differential Diagnosis and Diagnostic Tests

ERROR ON SLIDE 5:  Congenital adrenal hyperplasia should be listed on Slide 6 as a cause for HYPERkalemia, not on Slide 5 as a cause for hypokalemia.
9:50am – Dr. James Cleland – Electrodiagnosis of Periodic Paralysis

10:30am – Dr. James Cleland – PP in New Zealand and Some Cases

POWERPOINT ONLY Dr. Cleland

1:15pm – Our Ukrainian guests share their story through translators
1:45pm – Auction

2:00pm – Dr. Grace Charles – Integrative Medicine including Yoga and Alternative Therapies

POWERPOINT ONLY of Integrative Medicine by Dr. Grace Charles

2:45pm – Dr. Mickey Segal – Combining Clinical and Genome Information to Improve Diagnosis AND Update on Lidocaine-Insensitive Type of Periodic Paralysis

POWERPONIT ONLY Dr. Segal

4:00pm – Deb Cavel-Greant and HypoPP Survey via Webinar from Canada

DEB GREANT VIDEO

DEB GREANT POWERPOINT
4:30pm – Webinar Questions Saturday and Sunday

Sunday, October 13, 2013

9:00am – Linda Feld and Shelley Shifman – State of the PPA

POWERPONIT ONLY State of the PPA
9:15am – Dr. Frank Weber: Anesthesia – Pearls and Pitfalls in Periodic Paralysis

POWERPOINT ONLY – Dr. Weber Anesthesia
10:00am – – Dr. Frank Weber: New Research and Drug Therapies AND Thymus Hyperplasia

POWERPOINT ONLY – Dr. Weber Drug Therapies

12:00pm – Webinar Questions Saturday and Sunday ( repeated )