2019 Conference Orlando

October 25-27 

Rosen Shingle Creek Hotel

9939 Universal Blvd, Orlando, FL 32819


We are pleased to announce our 2019 PPA Conference to our membership. This is a 3 – day conference and is open to all PPA members, their families, and physicians. There is NO conference fee for the conference and all attendees are invited to join us for dinner on Saturday evening in the Conway Room of the hotel at our expense.  This will be a wonderful time to renew old friendships and forge new ones! Please see the agenda for the conference which includes all speakers, times of presentations, and dinner. This is not a formal dinner, please be comfortable!


Hotel reservations are your responsibility and you should use the button below or call 407-996-6338 to access our special room rate.

Room booking at Rosen Shingle Creek

As usual we are welcoming an esteemed panel of speakers who will interact with you and answer questions of all kinds. This is an extremely diversified group of speakers and we welcome all of them to the PPA family.


There will be onsite Paramedic coverage during all conference hours. We always encourage people to bring a friend or family member with you that could accompany you to the hospital if the need should arise and be your advocate. PPA leadership and attending physicians cannot treat you medically in an emergency situation nor will they accompany you to the hospital.


We keep the conference room at a constant 75 degrees. If you get cold or warm, please bring the appropriate attire. It is also important to bring any mobility devices or other equipment with you as our sources are limited. Water will be available at all times, don’t forget to bring your personal medications!


The meeting room has floor to ceiling windows and is on the first floor of the hotel with access to an outdoor patio. You may move about as you wish during the entire conference. Handicap bathrooms are located just outside the meeting room.


If you have questions, large or small please do not hesitate to call or text Linda Feld at 407-339-9499


You MUST register for the conference. If you do not register you will not be admitted. We need a head count of ALL attendees. Use the registration form to register (button below). Please make sure your email is valid as you will receive a notice of your registration.

Register for Orlando 2019 Conference

On the registration form the person whose name is used to register is #1 in the party. Additional lines are provided for OTHER family members or guests. Do not count yourself two times.


We look forward to seeing you in October for the biggest and best conference ever!!



Friday Oct. 25

1:30 pm Hello from the PPA – Jacob Levitt

1:45 pm Introduction of Board Members

                Shelley Housekeeping details

2:00 pm Patrick Cochran making presentation to Dr. Tarleton

2:15 pm Dr. Tarleton

2:45 pm Questions Dr. Tarleton

3:00 Break

3:15 pm Dr. Bell interacts with patient’s stories

4:30 pm Introduction of Canine Companions for Independence

5:00 pm Conference ends for day

6:00 pm Doctor/Board dinner

6:00 pm Stongbridge attendee Dinner (free of charge)


Saturday Oct. 26

8:30 am Introductions by Strongbridge Bio Pharma

8:45 am Dr. Todd Bell

9:15 Questions Dr. Bell

9:30 am Dr. Lewis

10 am Questions Dr. Lewis

11:00 am Break for lunch on your own

1 pm Dr. Cannon

1:30 pm Questions Dr. Cannon

1:45 pm Dr. Catterall

2:15 Questions Dr. Catterall

3:00 pm Break

3:15 pm Dr. Round Table

4:30 pm Conference ends for Day

6:30-9:00  pm Buffet Dinner for all Attendees


Sunday Oct. 27

9:00 am Dr. Subramony

9:45 am Questions Dr. Subramony

10:15 am Break

10:30 am Anne Bealke PTSD

11:30 am Closing remarks from Jake

12:00 pm Conference ends


Dr. Cannon
Dr. Lewis
Dr. Tarleton
Dr. Bell
Canine Companions



Patrick Cochran

Anne Bealke

Dr. Catterall

Dr. Subramony



Rosen Shingle Creek Hotel

9939 Universal Blvd, Orlando, FL 32819


Reservations in Periodic Paralysis Association Room Block


                    You must use this link or call to get the special rate.


phone 407-996-6338