Live informational event (June 13th) on Primary Periodic Paralysis

Dear Member of the Periodic Paralysis Association Mark your calendar! You are invited to attend a FREE live (in-person) informational event on Primary Periodic Paralysis (PPP) sponsored by Strongbridge Biopharma®. This event will feature a Patient Ambassador, Janine G., sharing her journey, as well as insights from a neuromuscular expert who specializes in diagnosis and …

Live informational event (May 2nd) on Primary Periodic Paralysis

Dear Member of the Periodic Paralysis Association Mark your calendar! You are invited to attend a FREE live (in-person) informational event on Primary Periodic Paralysis (PPP) sponsored by Strongbridge Biopharma®. This event will feature a Patient Ambassador, Janine G., sharing her journey, as well as insights from a neuromuscular expert who specializes in diagnosis and …

We are delighted to report on the success of the PPA Conference held at the Hilton Dublin Airport Hotel and Conference Center from August 17th through 19th! Over ninety people attended, from places such as Botswana, China, Europe, and the US. The conference was special for many reasons: Firstly, because this was the first time …

Gabriel Low, triathlete

Dear Fellow PPA Member, It is with the greatest excitement that we share an incredible story with you! Gabriel Low is a 17-year-old competitive triathlete, but not a typical one.  A triathlon combines swimming, bicycling and running in rapid succession, and is not easy for anyone.  He is currently in training for the USA Triathlon …

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