Dear Periodic Paralysis Community,
It is with deepest sorrow that we learned of the passing of Dr. Frank Lehmann-Horn. Frank had struggled with a series of cancers for the past few years, forcing him to give up his lab. He has done so much for periodic paralysis and patients. He pioneered genetic testing, offering it for free to many of us, and discovering mutations in many of us thereby validating our diagnosis and allowing us to optimize our therapy. He coached many of us in our treatments. He pioneered diagnostic methods, like sodium MRI and new treatments, like eplerenone. He published prolifically, literally writing the textbook chapters on periodic paralysis and related disorders. He mentored generations of researchers and clinicians. Most important, he was loving and kind, a fervent supporter of the Periodic Paralysis Association and of the patients suffering with these diseases. He will never be replaced, never be forgotten, and always be missed.
The most meaningful award Frank received in his lifetime was the Art of Listening Award. He valued that night more than all his professional awards because it was from his patients whom he loved. You can click on the link here to see the ceremony.
With Deep Sadness,
The PPA Board