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Possible network interuptions

Dear Visitor, On May 31 between 7PM and 11PM EST, the site will be intermittently off line due to mandatory network maintenance.  Any interruptions are anticipated to only last for a short period of time.

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Registration 2017 Scottsdale opened

The PPA is proud to open registration for our 2017 Conference which will take place Oct. 13-15 in Scottsdale, AZ.   Speakers for this conference include the following: Dr. Frank Weber –  Ulm, Germany Dr. Steve Cannon – California, USA Dr. Louis Ptacek – Utah, USA Dr. Michael Segal – Massachusetts, USA Dr. Todd Malen […]

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PPA site security improved

The PPA site is upgraded to a SSL security layer.   Why SSL? The Purpose of using SSL Certificates SSL is the backbone of our secure Internet and it protects your sensitive information as it travels across the world’s computer networks. SSL is essential for protecting your website, even if it doesn’t handle sensitive information […]

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Email functionality improved

Because sending emails through the contact forms was heavy time consuming, the site is updated to the latest state-of-the-art mail functionality.   The email facility is used for all contact forms, registration purposes, confirmation of profile changes etc.   If You encounter any problems though, please contact the webmaster directly.

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Forum registration changed

Participation on the Forum is only possible for registered members. Up till now, registration was possible on the forum itself. This resulted in a flood of false registrations by internet bots. The forum administrator changed the registration procedure. As from now, new members can only register through a registration request. This request can be made […]

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Strongbridge Biopharma plc Announces Acquisition of U.S. Rights to KEVEYIS® From Taro

December 23, 2016 08:01 ET | Source: Strongbridge Biopharma plc and GlobeNewsWire ~ KEVEYIS is the First and Only FDA-Approved Treatment for Hyperkalemic, Hypokalemic, and Related Variants of Primary Periodic Paralysis, an Ultra-Orphan, Genetic Neuromuscular Disease ~ ~ KEVEYIS is Strongbridge’s First Commercial Product and Expands its Rare Disease Portfolio ~ DUBLIN, Ireland and TREVOSE, Pa., […]

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NEWS FLASH FROM THE PPA! SAVE THE NEW CONFERENCE DATES!

Happy New Year Everyone! As promised we have some BIG announcements to make for 2017-2018 and we hope you will mark your calendars! PPA Conference USA Scottsdale AZ October 13-15, 2017 Registration will open in March Embassy Suite Hotel is now accepting reservations 5001 N. Scottsdale Road, Scottsdale, Arizona, 85250, USA TEL: +1-480-949-1414 PPA Conference […]

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PPA :: Fundraising 2016

November 20, 2016 Dear Friends of the Periodic Paralysis Association, The time of the year has come again for our fundraising campaign.   Today, the PPA is living a legacy of commitment to our members and their families.  Our mission is to continue to provide the best medical research, access to medical experts, and bi-annual conferences […]

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Newsletter November edition

Welcome to the Periodic Paralysis Association’s Newsletter Page! With the launching of our updated website, the PPA Board thought it would be a good idea to use a newsletter page to either feature something new in our world, to showcase an individual who has made significant efforts to help others, or to revisit important facts […]

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Shortage of all powder formulations of potassium chloride

Dear PPA Members, The PPA has become aware of the possibility that the FDA will pull all powder formulations of potassium chloride off the market as of this coming Monday, September 26, 2016. We did not confirm this, but we wanted to let you know as soon as possible because of the dire implications if […]

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