News

Read also our latest newsletter

 

This page will contain news facts

Primary Periodic Paralysis Awareness on TV

See our very own Linda Feld in the Primary Periodic Paralysis Awareness segment, on Lifetime TV’s The Balancing Act: Behind the Mystery of Rare and Genetic Diseases,  airing on Monday September 25th,  and Monday October 2nd 7:30am EST/PST (6:30 central, 5:30 mountain). Primary Periodic Paralysis (PPP) is a rare condition that causes attacks that affect your muscles resulting in extreme muscle weakness or temporary paralysis, most often with an inability to stand independently, or even sit up. Primary periodic paralysis is not just one condition, but a group of inherited neuromuscular disorders. Although this […]

Posted in News | Comments Off on Primary Periodic Paralysis Awareness on TV

Embassy Suites full

If you are planning on attending the PPA Conference in Scottsdale, AZ October 13-15 please make your hotel reservations at alternative hotels nearby. Embassy Suites by Hilton is where the conference will take place!  

Posted in News | Comments Off on Embassy Suites full

Registration 2017 Scottsdale opened

The PPA is proud to open registration for our 2017 Conference which will take place Oct. 13-15 in Scottsdale, AZ.   Speakers for this conference include the following: Dr. Frank Weber –  Ulm, Germany Dr. Steve Cannon – California, USA Dr. Louis Ptacek – Utah, USA Dr. Michael Segal – Massachusetts, USA Dr. Todd Malen […]

Posted in News | Tagged , , , , | Comments Off on Registration 2017 Scottsdale opened