Documents and Videos

What does the PPA offer you

The website
The website of the PPA contains a variety of information. To start, read this article

PPA Forum
The PPA has a extended forum with all kind of topics about periodic paralysis.you have to be a member. Read here how te become a PPA Member

Medical Advisors
The PPA has a selected panel of Periodic Paralysis Experts. For information about our Medical Advisors, go to our biography page.

Ask the Experts
You can ask our Medical Advisors questions. To ask questions of our Medical Advisors,you have to be a member. Read here how te become a PPA Member

Find a Doctor
This gives you a list of all recommended doctors worldwide. Members can recommend their own doctor to the list.

The great Frank Lehmann-Horn library

Dr Frank Lehmann-Horn devoted his working life  to unraveling the mysteries of ion channel diseases. His work is invaluable to the PPA. We are very proud to be able to publish all his articles he wrote or co authored. Go to this excellent library

Social Security Disability Benefits

If you or a loved one has been diagnosed with Periodic Paralysis, you may be concerned about your future ability to work. The good news is that the Social Security Administration (SSA) makes disability benefits available for those who are physically unable to earn income due to Periodic Paralysis. Receiving this monthly support income will go a long way toward easing your financial worries during this very difficult adjustment period.

Read more on this page

 

Instruments for your GP

Medical professionals can get a “simultaneous consult” about their patient’s diagnosis using SimulConsult’s diagnostic decision support software in three ways.

Individual medical professionals can register for a free Classic Phenome version. Using this version, they can enter patient findings into the software to get an initial differential diagnosis and suggestions about other useful findings, including tests. They can also send the Patient Summary output to radiology and genomic labs to improve communication, in lieu of a detailed note.

For all the information, see SimulConsult.

 


Other Links:

Hyperkalemic Periodic Paralysis
Normokalemic Periodic Paralysis
Hypokalemic Periodic Paralysis


Genetic Alliance

 

 

 


  CINCH

 


Periodic Paralysis International

 


 Periodic Paralysis Research Library

 


MDA

 


NIAMS