Video Library

Lectures from our medical specialists

Dr Baughan (Annabelle) :: Anaesthesia and pre-operative care in the primary Periodic Paralysis Disorders (2018)
Dr Bell (Todd) :: Periodic Paralysis: Other Symptoms (2017)
Dr Cannon (Steve) :: Research Updates in Periodic Paralysis (2018)
Dr Cannon (Steve) :: Status overview (2017)
Dr Charles (Grace) :: Integrative Medicine, Yoga, and Alternative Therapies (2013)
Dr Cleland (Lewis) :: PPA Cases (2013)
Feld (Linda):: Tribute to dr Frank Lehmann-Horn (2018)
Dr Greant (Cavel) :: HypoPP Survey (2013)
Dr Levitt (Jacob) :: Differential Diagnosis (2013)
Low (Gabriel) :: Ride for Rare Disseases (2018)
Low (Gabriel) :: Ride for Rare Diseases The movie (2018)
Dr Malan (T) :: Stem Cell Therapy, what is possible (2017)
Merkus (Esther) :: To be a Patient and a Doctor (2018)
Dr Ptacek (Louis) :: Progress on Periodic Paralysis: A Quarter of a Century Later (2017)
Dr Segal (Michael) :: Explanation about SimulConsult (2018)
Dr Segal (Michael) :: Questions and Answers (2018)
Dr Segal (Michael) :: Genetic Testing (2013)
Sanderse (Irm) :: My Life Changing Experience in Ulm Germany (2016)
Dr Shifman (Samantha) :: Getting The Most Out of Your Pharmacy (2017)
Dr Stunnenberg (Bas) :: From evidence-based to personalized medicine in skeletal muscle channelopathies (2018)
Ukrainian Guests: Comments about PP (2013)
Dr Weber (Frank) :: Muscular Channelopathies in Periodic Paralysis (2018)
Dr Weber (Frank) :: Muscular Channelopathies (2017)
Dr Weber (Frank) :: Anesthesia New Drugs and Research (2013)
Webinar Q&A (2013)

All lectures of the past conferences are available on this page

General information

PPA- Who We Are, How To Help

Paralysis Attack ‎‎(Hypokalemic Periodic Paralysis)

HyperPP Attack

Mild HypoKPP Attack

Mild HypoKPP Attack ‎(Hand)‎‎‎

Fournier EMG Protocol

The Diagnostic Journey of Linda Feld

Part I

Part II

The Balancing Act

Primary Periodic Paralysis (PPP) is a rare condition that causes attacks that affect your muscles, resulting in extreme muscle weakness or temporary paralysis, most often with an inability to stand independently, or even sit up. Primary periodic paralysis is not just one condition, but a group of inherited neuromuscular disorders. Although this condition is very rare, it affects about 5,000 to 6,000 individuals in the US or ~3 in every 200,000 people.