Dear Member of the PPA,
You are invited to attend an informational dinner program on Friday, October 25th at 6pm in Orlando, FL during the free evening of the PPA Conference. This program is sponsored by Strongbridge Biopharma® and will focus on the power and importance of advocacy, education, and support when living with Primary Periodic Paralysis (PPP).
This program will feature five Strongbridge Patient Ambassadors who will share their journeys living with and managing PPP, as well as two of their caregivers. Also speaking will be Dr. Carlyane Jackson and Dr. Jeffrey Rosenfeld, neurologists who focus on neuromuscular disorders, including PPP.
Since a complimentary dinner will be served, please register in advance for the event. All dietary needs will be mindfully accommodated. If there is something in particular that would make this event easier for you to attend, don’t hesitate to note this during registration.
Rosen Shingle Creek Hotel
9939 Universal Blvd.
Orlando, Fl 32819
DIETARY NEEDS & RESTRICTIONS WILL BE ACCOMMODATED
To register for this event please visit:
or call 888-203-7430