Documents

General documents

Documents Review of the Diagnosis and Treatment
Documents The impact of permanent muscle weakness on quality of life in periodic paralysis
   
Documents Hypokalemic Periodic Paralysis Owner’s Manual
Documents Managing Periodic Paralysis 101
Documents How can I cope with Hypokalemic Periodic Paralysis
Documents Practical Aspects in the Management of Hypokalemic
Periodic Paralysis
Documents Differential Diagnosis of Periodic Paralysis and
Important Diagnostic Tests
Documents Treatment and Prevention of Periodic Paralysis
Documents Anesthesia and Periodic Paralysis
Documents Muscle Chanpathies Guidelines: Acta Myologica
Documents Uncovering Periodic Paralysis :: a publication
from Strongbridge
Documents Doctor Discussion Guide :: a publication
from Strongbridge

 

The video library

General information, but also all the lectures from Medical Specialist from all over the world from our conferences in the past 10 years.

 

The Great Frank Lehmann-Horn Library

Dr Frank Lehmann-Horn devoted his working life to unraveling the mysteries of ion channel diseases. His work is invaluable to the PPA. We are very proud to be able to publish all his articles he wrote or co authored.

 

A document to help you discovering your paralysis triggers

This document is written by Bas Stunnenberg MD. and can help you to log your attacks.

 

Pocket Cards

There are several ways to present care givers vital information when needed. We created pocket cards.

 

Articles from other groups

A large amount of articles of other groups.

 

Instruments for your GP

Medical professionals can get a “simultaneous consult” about their patient’s diagnosis using SimulConsult’s diagnostic decision support software in three ways.



Individual medical professionals can register for a free Classic Phenome version. Using this version, they can enter patient findings into the software to get an initial differential diagnosis and suggestions about other useful findings, including tests. They can also send the Patient Summary output
to radiology and genomic labs to improve communication, in lieu of a detailed note.

For all the information, see SimulConsult.

Social Security Disability Benefits

If you or a loved one has been diagnosed with Periodic Paralysis, you may be concerned about your future ability to work. The good news is that the Social Security Administration (SSA) makes disability benefits available for those who are physically unable to earn income due to Periodic Paralysis.

Receiving this monthly support income will go a long way toward easing your financial worries during this very difficult adjustment period.

 

Other Links