The video library
General information, but also all the lectures from Medical Specialist from all over the world from our conferences in the past 10 years.
The Great Frank Lehmann-Horn Library
Dr Frank Lehmann-Horn devoted his working life to unraveling the mysteries of ion channel diseases. His work is invaluable to the PPA. We are very proud to be able to publish all his articles he wrote or co authored.
A document to help you discovering your paralysis triggers
This document is written by Bas Stunnenberg MD. and can help you to log your attacks.
There are several ways to present care givers vital information when needed. We created pocket cards.
Articles from other groups
A large amount of articles of other groups.
Instruments for your GP
Medical professionals can get a “simultaneous consult” about their patient’s diagnosis using SimulConsult’s diagnostic decision support software in three ways.
Individual medical professionals can register for a free Classic Phenome version. Using this version, they can enter patient findings into the software to get an initial differential diagnosis and suggestions about other useful findings, including tests. They can also send the Patient Summary output
to radiology and genomic labs to improve communication, in lieu of a detailed note.
For all the information, see SimulConsult.
Social Security Disability Benefits
If you or a loved one has been diagnosed with Periodic Paralysis, you may be concerned about your future ability to work. The good news is that the Social Security Administration (SSA) makes disability benefits available for those who are physically unable to earn income due to Periodic Paralysis.
Receiving this monthly support income will go a long way toward easing your financial worries during this very difficult adjustment period.