PPA Leadership Team
Linda A. Feld
President, Board MemberContact
Linda Feld is from Connecticut and has a background in elementary education. Since moving to Florida in 1975 Linda has spent much of her time as a volunteer for various organizations. Those include Hospice, Canine Companions for Independence and as an Ombudsman for Elder Affairs in the state of Florida. She has been affiliated with the PPA since 2000 and has served as Secretary, Vice President and now President of the organization.
Linda has a Service Dog named Valentine and she is happy to share her experiences with him if anyone is interested.
Linda is genetically diagnosed with Normokalemic Periodic Paralysis and spent a great deal of time in Germany with the late Dr. Lehmann-Horn learning much about these disease states and the genetics involved. She has made presentations world- wide about this disease and always looks forward to meeting new patients and helping them on their journey. She is always available to share her journey and embraces our philosophy that âYou are not aloneâ.
Secretary, Board Member Contact
Jeff Albertson grew up in the mountains of North Carolina and he graduated with a BA in English literature from St. Andrews College in Laurinburg, N.C. He has done extensive work in commercial radio and has also recently published a novel. Jeff moved to Florida in 1975 and was a theme park retail product development specialist with Walt Disney World, Universal Orlando and the Kennedy Space Center Visitor Complex until retiring in 2006. Since 2012, Jeff has been a volunteer for Hospice of the Comforter in Altamonte Springs and with Canine Companions for Independence in Orlando FL.
Inspired by the community spirit of those associated with Periodic Paralysis, he is completely awestruck by their work to educate the medical field and afflicted individuals about the disease so that it will be eliminated.
Treasurer, Board Member Contact
Monica Cramer grew up in Orlando, Fl and has a background in the equestrian industry, animal education and bookkeeping/accounts payable. She returned to school and is working towards her Bachelor of Social Work (BSW).
Monica was clinically diagnosed 9 years ago with Hypokalemic Periodic Paralysis. Recently her family became part of a study and Myotonia Congenita has been added to her diagnosis.
The PPA has been a key factor for Monicaâs diagnosis and treatment. She currently is a member of the local PPA support group here in Central Florida.
Monica Cramer serves as Treasurer of the PPA.
IT Director, Privacy Officer, Board MemberContact
Eric A. Sanderse is a linear Accelerator Engineer and maintains and repairs Oncology equipment in the largest oncology center in The Netherlands, the Erasmus MC. He studied precision mechanics and received his technical bachelor (BEng) at the âHoge School Enschedeâ in the study âMedical Engineeringâ. In his work he received many educational programs which made him to an exceptional specialized technical engineer.
Besides his work on the Erasmus MC, Eric is CEO of two private companies. The branches of these companies are both in IT. One is designing custom software and sells hardware, the other company is designing apps for local government to enlarge public safety. Next to that, he designs web sites in HTML, PHP, JAVA en MySQL and writes software in Python and Delphi.
Eric is together with Irm since 1984 and married her in 1993. Together they have two kids, Vivianne and Thomas, who are young adults yet. Eric got involved in the PPA because Irm and Thomas both suffer from Periodic Paralysis.
Since 2011 he attends the conferences in Orlando and in 2015 he was asked to take place in the board of the PPA. Eric feels very honored with this request and is thrilled to represent Europe as PPA board member.
Growth Development Director, Board MemberContact
Evelyn Black was born in NJ but spent her formative years in Colombia, SA which she believes has afforded her a unique life perspective and a love for travel. In 1996 she moved to Orlando and has been a resident ever since. She studied at UCF where she obtained a MS degree in Change Management. Since then she has worked in the Human Resources field and is currently the HR manager for a well-established construction company.
In addition to her work life, Evelyn has a philanthropic spirit and enjoys volunteering as a mentor for at risk youth and partnering with Habitat for Humanity.
After learning about PP, Evelyn was motivated to join the PPA in its mission to generate awareness and to educate both the medical field and the public about PP. She hopes that her small efforts will lead to positive changes in the diagnoses and treatment of PP.